Introduction to the Lupus Foundation of America
The Lupus Foundation for America (LFA) is a wonderful society that provides continuing support for Lupus patients. I came across this video on YouTube and just wanted to share with you the good work that these people are doing.
In a previous post, Living with Lupus, I spoke about a girl who had been diagnosed at age 12 with the disease. Halee (the girl) and her family had been given an enormous amount of support and they had give just as much back to the foundation.
What does the LFA actually do?
The LFA's primarily aim to improve the quality of life for Lupus patients, find a cure and to also raise awareness on the disease; their slogan is "from care to cure." The published mission objectives of the LFA are to:
- Shine a light on this medically under-served disease
- Accelerate the pace of medical research on lupus
- Build support for the needs of those affected by lupus
- Elevate lupus to a place of prominence on the nation's health care agenda.
The LFA has a fairly aggressive outreach program to raise awareness and understanding of the disease to the public. The way they do this is through:
- National and international awareness campaigns
- Proactive media outreach
- Innovative online content and social networking
- Educate policy makers on the needs of people with lupus - making it easier for lupus patients to work around their illness
- Secure additional funds for research, education, and support services.
How does the LFA support People with Lupus?
- Offer support groups for those who need special help
- Provide referrals to those who need community support - becoming more involved with GPs for everyday health care needs
- Provide access to Lupus Experts through online and local programs and events
- Social networks to share experiences
As you can see the LFA is doing a fantastic job at making its research findings into accessible material for patients and the public. By continuing this work we can raise awareness of Lupus and help to find a cure for this disease.
How can I help?
Lupus charities, foundations and research facilities all over the world need continuos sources of funding to carry on their work so any additional funds is a bonus. There are many ways that you can help, the LFA have a selection of activities such as Walk for Lupus, raising money online, purchasing their merchandise to help spread awareness of Lupus and participating in clinical trials if possible. So get some friends together and go spread the word.
Do you know anyone who is suffering from Lupus or other invisible illness, what have you done to help them or raise awareness of their disease?